Finding community when you are chronically ill ✨
As we touched on during our latest podcast episode, connection is so important, but as disabled people it can often feel challenging to feel connected to your community. A lot of places still are not accessible, both online and offline, but there are still lots of ways we can build connection and community.
The good news is, you’re already part of (in my opinion) one of the coolest communities of people you can be part of, the disabled community. We are pretty awesome, whether that’s advocating for change, or just getting up in the morning after a flare. We know how to do the hard things, not because we are inherently stronger than anyone else, but because we have had to be to survive. There is so much beauty in that collective resilience.
Sometimes when our health changes, what we can do changes too. Old hobbies we have had for years may suddenly become inaccessible, but we can adapt so we can continue to do what we love, even if it looks a little bit different now. For example, if you used to enjoy attending a local writing group you could consider joining an online version instead or on the weeks you can’t attend in person. There are many groups specifically ran for and often by disabled people, these can feel really safe and comforting because you know there are people there who understand. There are also groups, especially since covid, not specifically for disabled people that meet online too.
What community to join?
When you’re considering what community you want to join think about your passions and interests. The things you do that bring you joy. You may feel more confident joining a group on a topic you already have some knowledge of, likewise learning something new can also be a fun way to connect with people. You could also choose to volunteer for a charity or project, giving you a chance to be part of a team and make a difference to others lives.
Where to find community online:
My first step when looking for an online group is an internet search, but you can also check out platforms such as Facebook or Meetup, both contain information and options to join groups and events. It’s always important to be cautious when joining any group. Those ran by charities will likely have safeguarding policies in place.
Where to find volunteering opportunities online:
Reach Volunteering: Offers information on a range of volunteering options in the UK.
The National Council for Voluntary Organisations: Provides information on volunteering and volunteering opportunities in the UK.
Charities often need volunteers, and will typically have a dedicated section for volunteer recruitment on their website. If there is a particular cause you are passionate about check out their website to see if there is an opportunity that fits your skills and interests.
Here are a few examples groups and organisations aimed at supporting disabled people:
EDS UK: EDS UK runs virtual and in-person support groups across the UK.
![[Image description: A group of people standing in a circle all touching hands in the centre]](https://images.unsplash.com/photo-1582213782179-e0d53f98f2ca?crop=entropy&cs=tinysrgb&fit=max&fm=jpg&ixid=M3wzMDAzMzh8MHwxfHNlYXJjaHwxfHxjb21tdW5pdHl8ZW58MHx8fHwxNzUxMjU2OTQyfDA&ixlib=rb-4.1.0&q=80&w=1080 "[Image description: A group of people standing in a circle all touching hands in the centre]")
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Disclaimer: Resources are included for general information only and do not constitute as endorsements.